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A network of volunteers from several companies have stepped up to change the lives of a Calgary family. The focus is an adorable toddler with a life-threatening condition. Two-year-old Jake Davis was diagnosed as an infant as ERCC1-deficient. It basically means his DNA doesn’t repair at a cellular level. It’s …
Read More »TIFF 2023: A rare diagnosis is a source of pain and joy in director Molly McGlynn’s ‘Fitting In’ – Toronto
Molly McGlynn always knew she was going to make a movie based on her experience with a reproductive disorder that changed her life in “unimaginable ways.” But the Montreal-born filmmaker first wanted to get her “sea legs” in the industry by working on other projects. After making several short films …
Read More »3 Alberta siblings with rare, terminal disorder finally have hope for a treatment
A family from Evansburg, Alta., with three children who have been diagnosed with the rare and fatal Batten disease has been given a new kind of hope due to an older medication. Members of the Lamprecht family said they were told the chances of three of their four children having …
Read More »Coyote attacks rare, but follow safety tips in an encounter: FortWhyte wildlife expert – Winnipeg
After a nine-year-old boy was mauled by a coyote in a quiet North Kildonan neighbourhood Saturday evening, many Winnipeggers have concerns about what to do if they have a similar encounter with a wild animal within city limits. FortWhyte Alive’s Barrett Miller told 680 CJOB’s The Start that attacks by …
Read More »Winnipeg Blue Bombers mauled by Lions in rare flop at home – Winnipeg
Just when it looked like nothing was going to stop the Winnipeg Blue Bombers offence this season, the B.C. Lions came to town. Winnipeg was held to just two field goals and fell 30-6 to the Lions in front of 25,662 stunned fans at IG Field Thursday night. And the …
Read More »Nicole makes landfall as rare November hurricane, affecting some Canadian flights to Florida
Shortly after Hurricane Nicole made landfall early Thursday along the east coast of Florida, it downgraded to a tropical storm but it was still battering a large area of the storm-weary state with strong winds, dangerous storm surge and heavy rain, officials said. The rare November hurricane had already led …
Read More »Why Toronto city council is getting a rare chance at renewal in the upcoming election
As Toronto’s civic elections go, the 2022 vote will be a rare opportunity for dozens of candidates. The most incumbents in recent memory — seven of 25 councillors — are calling it quits. That means Toronto is guaranteed seven new faces in the council chambers this fall. It’s been made possible …
Read More »We need rare earth elements for a greener future, but there’s a catch
CBC Alberta and Saskatchewan have teamed up for a new pilot series on weather and climate change on the Prairies. Meteorologist Christy Climenhaga will bring her expert voice to the conversation to help explain weather phenomena and climate change and how it impacts everyday life. In the push to transition …
Read More »Toronto boy whose parents raised $3M to treat his rare genetic disorder starts clinical trial
After his parents desperately raised $3 million over three years trying to find a cure for their son’s rare genetic disease, Michael Pirovolakis is one step closer to possible recovery. Michael, 4, is the only child in Canada diagnosed with spastic paraplegia 50 (SPG50), a slowly progressing neurodegenerative disorder that generally …
Read More »After losing their children to rare cancer, Alberta parents advocate for nationwide change
A home once filled with music and laughter feels empty without Gabriel Rey. The piano he used to play hasn’t been touched since the 12-year-old Calgary boy lost his battle with diffuse intrinsic pontine glioma, or DIPG. “The voice, the shouting, the running around, the, ‘Do your homework first before …
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