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The man behind the Moose Jaw health centre that has claimed “a 100 per cent success rate in stopping the progression and in restoring function of people with ALS” says a recent CBC story about his company is evidence that he is seen as “a direct threat to the ALS …
Read More »American ALS patient died alone after paying $84K US in pursuit of healing at controversial Sask. facility
By early December of last year, Susie Silvestri was no longer able to walk or speak. She hadn’t eaten for days. The 70-year-old American found herself in the vice-grip of her rapidly progressing ALS — a disease that causes gradual loss of muscle control. She was begging doctors at …
Read More »How an AI cloning tool is letting this Quebec man with ALS keep his voice
Leaning into a small microphone in a Quebec City studio, Dr. Alec Cooper takes a breath and reads out part of the often-quoted “To be, or not to be” soliloquy from Shakespeare’s Hamlet. “It’s pretty dramatic,” said Cooper, backing away from the microphone and letting out a laugh. “I just …
Read More »The Ice Bucket Challenge is back, minus ALS. Not everyone is thrilled about the rebrand
In so many ways, 2014 was a simpler time. We were still six years out from the pandemic. The U.S. had its first Black president. Gen Z hadn’t yet started influencing our fashion, so we were still rocking skinny jeans and ankle socks. And Gen Alpha hadn’t yet been unleashed on the skincare section …
Read More »Euphoria and Grey’s Anatomy actor Eric Dane diagnosed with ALS
Euphoria actor and former Grey’s Anatomy veteran Eric Dane has announced that he has ALS but will continue working. Dane, 52, revealed his diagnosis of amyotrophic lateral sclerosis, a progressive disease that attacks nerve cells controlling muscles throughout the body and is also known as Lou Gehrig’s disease, in an interview with …
Read More »Regina woman is living proof of ‘breakthrough’ ALS drug now approved in Canada
A Regina mother who was one of the first ALS patients to test a new treatment is now celebrating its accelerated approval in Canada for adults with an ultra-rare form of the disease. Paula Trefiak’s remarkable experience on tofersen, a medication sold under the brand name Qalsody, is reflective of why researchers …
Read More »‘I truly have lived a wonderful life’: B.C. mayor to step down after ALS diagnosis
Descrease article font size Increase article font size The longtime mayor of Sun Peaks is stepping down due to a medical condition. Al Raine announced he will be leaving his role due to a rare form of ALS called bulbar ALS. “Presently, I am not suffering and other than my …
Read More »Collaros tosses 4 TDs in return, Bombers bash Als for fifth straight win – Winnipeg
With their starting quarterback under centre once again, the Winnipeg Blue Bombers put on another offensive clinic in front of their home fans. The Bombers roughed up the Montreal Alouettes 47-17, thrilling a sellout crowd at IG Field Thursday night. Winnipeg moves to 9-2 with the victory for their fifth …
Read More »Nova Scotia couple upset over 11-year wait for ALS diagnosis
A terminal illness isn’t a diagnosis anyone wants to hear, but a Nova Scotia couple are speaking out about how that news was delivered. After 11 years of waiting to confirm what he already feared, Don Hutton was diagnosed with ALS at 57 a year ago. “I just thought, ‘My life’s over,'” said …
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